Our Hope

By sharing our story and our experiences with this birth injury we will hopefully educate people. Knowledge is power. Our hope is that you will read this blog, share it with your friends, and they will share with their friends. Then in some small way we have prevented other families from having to go through what we have.

Friday, May 1, 2009

St. Louis Trip

Hi Everyone! We have just returned from St. Louis. The news we received today was the news we had prepared ourselves for but that was still hard to hear. Jadon's damage is severe enough that he will not improve without surgery. Dr. Park wants to do surgery as soon as possible. We have to schedule and do an MRI at the Children's Hospital in Peoria. Then once they get the results down there from that they will schedule surgery. They won't really know how bad the damage is until the go in during surgery. Dr. Park made it clear that Jadon will never have full recovery of his arm. He will never have 100% use of his arm. The goal in surgery will be to get his hand and wrist functioning better and get the arm moving from the elbow down so he can do some normal life things like lift his hand to his mouth and pick up things. He said that most likely he will not be able to lift from the shoulder.

I will let everyone know when things get scheduled. We are still planning on going to Shriner's in Philadelphia for a second opinion. They have not returned my phone calls. I plan on calling them again tomorrow.

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