Our Hope

By sharing our story and our experiences with this birth injury we will hopefully educate people. Knowledge is power. Our hope is that you will read this blog, share it with your friends, and they will share with their friends. Then in some small way we have prevented other families from having to go through what we have.

Tuesday, June 8, 2010

Jadon's Check Up

Sorry I am so slow!  We survived, and are home from our lastest trip to Philadelphia.  Jadon saw Dr. Kozin on Friday morning.  Dr. Kozin is very happy with his progress.  Even pointed out to us that he is beginning to get some new functions we had not noticed.  Elbow extension is beginning to emerge.  Another function with is called pronation (rotating of lower arm so that palm is down) is also there.  So exciting! 

We expressed our concern to Dr. Kozin about how limp his wrist still is.  Jadon is able to bring the wrist inward toward his body but we have not seen any outward/upward motion yet.  Dr. Kozin will continue to watch that.  He did not seem happy with the wrist function either.  He wants Jadon to wear his "Superman" brace they made him last visit while he sleeps at night to stretch those muscles out to see if that helps.  He says that the finger flexors are very strong and it will take a lot for the wrist function to overpower that function.  We are remaining hopeful we will see improvement in that area.

The therapist measured him for a Benik splint to wear two different times a day for two hours at a time.  This will bring the wrist up but still allow him to opportunity to try and use his hand.  Perhaps even help him use his hand more.  They are going to order it for us.  It will go to Shriner's first where the therapist will fine tune it a little more and then she is going to mail it to us.  I will take a picture of it when it arrives to share with you. 

We go back in six months. 

Tuesday, June 1, 2010

On The Road Again

Wow! I can't believe how long it has been since I last posted! Yikes! Things have been so busy around here.

We are leaving tomorrow morning to start our journey to Philadelphia. Jadon has a check up at 9:30 on Friday morning with Dr. Kozin. I am very interested to see how he feels Jadon is progressing. I am growing impatient and at times anxious but I know that this is a slow process. I try to keep reminding myself of that, and stay positive. He has elbow. He is doing really great with bending at the elbow and when I stretch him out I feel how strong things are getting. We only see the wrist pull inward. No outward movement so the wrist just looks limp most of the time. I am a little concerned about that.

We continue to be concerned with his posture since he has started walking also. He does not walk straight and he does not lift his right leg as high as his left. So we plan to ask about these concerns also. Jadon tends to fall alot because of the combination of two issues....not having one arm to balance him, and the lopsided walking.

The weather here finally got nice enough for us to bust out Jadon's water table. I thought I would share some pictures of him playing. You can see how he bends at the elbow now.

We will update everyone after our appointment!