We got up bright and early Tuesday morning to continue on our journey. We wanted to have enough time for a little pit stop at ZooAmerica in Hershey, PA for some fun on our way. We always try to include some fun in our trip out. We really enjoyed the zoo. It was all North American wildlife and we really liked how their enclosures were set up. The best part was that we got in free with our Miller Park Zoo passes! We also ate at a Red Robin for the first time in Hershey. YUM!!
Jadon showing off his wingspan.
Jadon with his burger.
Dr. Kozin says that we need to continue to work on getting him to reach in and touch his belly button. That continues to be an issue. The therapist asked if we had ever used a "belly belt" which is something they make out of the material the therapist commonly use for straps. Things often stick to it so it is a good thing to make a belt out of that wraps around Jadon's midsection and then we stick things to it, and have him try to reach in and grab them. We told the therapist we do actually have one of those. She said to continue to use that so now I am trying to think up some fun games we can play to keep it interesting.
We also need to continue to work on anything that will build more hand strength. Dr. Kozin said that when we come back out next fall we will probably get Jadon's tendon transfer for the wrist scheduled. He needs his hand to be really strong for that.
Dr. Kozin also noticed that Jadon can't straighten his elbow out. I also explained that even during stretching I have trouble getting it straightened out. Since he holds his arm bent at the elbow most of the time during the day Dr. Kozin said we need to get him a brace to wear while he sleeps to keep it in a straight position so those muscles can stretch. Dr. Kozin had the therapists measure him for one. They are going to order it and send it to us. Our therapist will have to finish fitting it for Jadon and also make it fit over the night wrist brace he already wears to keep his wrist in a neutral position over night.
We have come home with things to work on in the next year and I know it will go by so fast so we had better getting to doing those things!!! We are now home safe and sound. We left for home Thursday morning at 5:30 home time and walked in the door of our house at 11:20pm. Ugh! Long trip but Jadon was so good and it was really nice to just be home!